Loxly

Some days are still really hard…

Posted on: September 18, 2009

Today is September 18, 2009. Tomorrow my son Dan would have been 29. In the Septembers since he died (May 2002) I have had a variety of emotions. Some years I can celebrate and be glad he lived his life at all, other years I wonder what was the point. The first birthday after he died was the hardest. We won’t go there but know that I was smart enough to know that I needed to have people on alert to come to NYC to take care of Chris (Dan’s older brother) at a moment’s notice in case I felt the need to check myself into a safe place. I am not ashamed to admit that there were very, very dark days that first September. It was also the first September after 9/11 and even though I didn’t lose anyone that day, that day changed the direction of my life. But that’s a post for another day.

Chris was unhappy that I was unhappy because even though he grieved the loss of his brother, he also felt it was his responsibility to take care of *me* and felt he was failing. Grieving is not easy to explain and is different for everyone, and I tried to explain that to him. I worked for a doctor’s group at the time, so I was on a variety of medications, had started counseling and was “doing all the right things”. But I was overwhelmingly sad. Counseling helped, medications made me insomniac and zombie like. That September I found out what a nervous breakdown was. People talk about them all the time. Most never really experience one. Ok, so maybe we will go there. I started this post to just express that this year his birthday is pretty difficult again, not nervous breakdown difficult, but just difficult. Instead maybe I need to talk about that first birthday so that other parents that have lost a child unexpectedly can understand that it gets really bad, but then it gets ok, and then sometimes it’s bad, but never “that” bad again. Your child wouldn’t want you to “go there” repeatedly.

Daniel and I had a special bond. He was the baby. He was brilliant. He was intuitive. He was an old soul. Elizabeth (his oldest sister) understood it and was not jealous or offended. Chris knew it and acknowledged it begrudgingly. He knew he was special too, each in their own way. When I was pregnant for Daniel, I had been married for a few years, had Liz and Chris close together, then a miscarriage because of an illness. Stress had started to erode the marriage. Lots of disagreements, but I was the “good wife” and tried to keep things mostly to myself. My husband was possessive and I knew if I divorced him, he would try to take my kids. Daniel would be my child I told myself during the pregnancy. If my husband took the other two, I would have Dan.

I didn’t leave my husband while I was pregnant, nor did I leave him while the kids were young. I had a way to cope, I had children with health issues that took up most of my time, I was a wedding photographer and was out working on weekends. He worked evenings so there wasn’t as much stress, at least not too much to not be able to handle it at the time.

Dan was demanding, but not in a bad way. He didn’t sleep at night, his brother and sister had to be up for pre-school, so I basically lived on coffee for several months, in a rocking chair or with him in a sling. Liz and Chris were happy in those baby swings, where they would play and sleep and rock. Dan needed to be held. It was ok, it’s just the way it was.

Life happened, I got divorced, my kids had special needs so I was never far from them. Liz went off to college, got married, had a baby. Dan went off to college, Hofstra, for a year on his own. Chris and I still lived together, showed cats, he went to community college and acted. Then summer 2001, Dan got accepted to NYU Scriptwriting program, Chris got accepted to Hofstra. Wow, my kids would be all away from home. And I had to move because of it, but again, a story for another day.

Our Septembers, as a family, always started with volunteering for the local Labor Day Telethon. Our family was deeply involved with fundraising for MDA. Another facet that made Septembers hard later on.

Summer 2001, I had to move 2 handicapped young men to two different colleges. Because Dan had already been to Hofstra, Chris was all set with Dan’s old room, and an aide to help him out. They couldn’t get out of bed themselves, nor could they get themselves to bed. This gets to be important. Dan at NYU we thought was also all set, but when we got to the dorm, they had no clue what we were talking about. Aide? What aide? So I had no choice but to stay at the dorm “for a couple of weeks” while they figured out where to get him an aide.

Then 9/11 happened. Suddenly the health care folks in lower Manhattan had other worries besides finding an aide for a young man at NYU. So my life changed. I lived in a dorm room with my son for 9 months. Again, another story for another day.

So Septembers have some issues for me. Mixed joy that I had a beautiful son born to me in 1980, and the pain when that day comes each year and he is no longer here to celebrate it. The memory of many family activities that we did each year, the pain that we will never do them again.

I guess the point of this post is that there is no point. Some years I can breeze by his birthday with a tip of the hat and do something special (one year I sat in a hotel room and read all of his movie scripts and plays that he had written, some for the first time, others for the 10th. Some I had “written with him”, participating in the the writing process, others just knowing bits and pieces). Other years I can’t function, I can’t breathe, I can’t believe he was taken from us.

Chris died quietly 3 years after Dan. I had the same reactions after Chris died, but accelerated. A nervous breakdown, but no meds and no formal counseling. They didn’t work the first time. Friends got me through the dark days after Chris died, because Chris had gotten me through the dark days after Dan died. After all, I still had Chris to take care of. When Chris died, I had no one to take care of. Liz had her own family. She needed me as a Mom, but not like her brothers did. And she understands. She feels it too. She had a special bond with her brothers too, and especially with Dan. There was something about him….

There still is….

(this is one of the unhappy years, even though I have great friends and a man that takes great care of me, there is no accounting for grief and what it is going to do and when it will pop it’s head up.)

Hope my rambling somehow makes sense and helps another parent feel better, or at least not feel like they are alone in their grief.

The worst thing people ever could say (including Dan’s dad) is “get over it, move on, the past is done”.

This year his birthday is also Jewish New Year. Maybe tomorrow will be better than I think and today (this week actually) is just a “bad day”.

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6 Responses to "Some days are still really hard…"

“get over it, move on, the past is done” is an incredibly insensitive thing for anybody to say when anybody has lost somebody. That’s just not how it works. A Mom is never going to feel that way about her child. Sad to say I suppose maybe, but even if you live to be a 100 you’re not gonna get over it. That’s something that will always be with you 😦

Only thing I can say is that the last thing in the world Dan would want would be for you to be sad on this day. You should feel blessed that you had such a close relationship with him, very proud of yourself cos you were a great Mom to him who was always there for him and the time you had with him was very, very special:):)

That’s not a sad thing…..you were responsible for making a very special young man who wouldn’t have been the man he was without all the Love and Support he had from his Mom:) Try to spend your day just thinking whatever pops in your head:) If you get sad, stop and think what he would say to you if he thought thinking of him was making you sad.

I can say all the nice words but you’re still probably gonna be sad. I hope not, but if you are……that’s OK:):) The world won’t end and then try to start the next day with a smile. You’ll be ok :):) as much as you’re dreading it now… you will be ok:) Besides, he’s with you. You may not see him physically but he’s up there lookin down at ya:):) Big, big hug for you:):)

Debbie, That hit me like a tsunami. I have no words of wisdom. Just speechless.

Wow Debbie, I had no idea what you’ve been through. I can’t even imagine the sadness of losing your children. Sending warm hugs your way….

Debbie, I cannot believe all the hardship and heartache you have been through. To come out of this experience bitter, begrudging and as a negative person, I would fully understand. But you are none of that. You have always come across positive, objective and as a helpful person. I now see that you are also a very strong, loving, giving, selfless and a good mother.

You don’t have to stop grieving over someone you have lost and love. The pain does not go away, but it does gets a bit softer and gentler over the years as time goes on. And Kathy is right, as a mom you will never get over the death of your own child.

I hope someday you will be able to do something with your son’s work. Perhaps a local theater, school or acting group would want to do something with it. It would be a great way to remember you son.

Thank you for the hugs and thoughts, it all helps. And yes, I would love if a college or theater group would put on his plays. He did get to produce one of his shorts while he was at NYU, it was an honor for a first year student (even though he wasn’t a freshman, it was his first year in the program) to be choosen to participate in the 10 minute play program where they allowed an author to cast, produce and direct their 10 minute play.

Unfortunately it wasn’t video recorded, but the memory of seeing his play onstage is something I will never forget.

Oh, Deb, hugs for you. hugs for you. I’m sitting here sobbing. For you. For me. Hugs.
I know what I want to hear so badly, so I’ll say it to you and see if it helps. You did good. You did right by him and the rips in your heart are the price you’re paying for what a good Mother he had.

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  • maisoto56348: I really liked King Hereafter, where the sparse saga style suited the characters and the setting. It’s one of my favourite books. Click
  • Jan: Deborah; You already have your wings, now you just need to fly. I am humbled. You gave your boys life--and they continue to live through you. Just a
  • Peggy: Deb, you make me smile and cry at the same time. ((hugs))
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